r/Nipah: rapid creation of an online discussion space during a serious disease outbreak. / Cole, Jennifer; Watkins, Chris.

In: Journal of medical internet research: public health and surveillance, 07.07.2019.

Research output: Contribution to journalArticle

Forthcoming

Abstract

Background
During health emergencies, the people within the affected communities ask many questions at a time when professional medics and health agencies are overstretched and struggling to cope. Our previous research has shown that, during the 2014-15 West Africa Ebola Crisis, volunteer-moderated online discussion forums were able to provide peer-to-peer reliable, trustworthy and well-managed information. We speculated that with the right mix of epistemic and experiential knowledge, such a discussion forum could be set up rapidly during a future serious disease outbreak.
Objective
The aim of this study was to set up a peer-to-peer health information exchange forum within the shortest time possible after the emergence of a real outbreak of serious infectious disease. An outbreak of Nipah Virus in Kerala, India in May 2018 provided the opportunity to test our theories.
Methods
We initiated a Nipah virus discussion forum on the platform reddit.com, recruiting volunteer moderators from within the existing reddit community. This facilitated posts and comments to the forum from genuine reddit users. We gathered and analyzed data on the number of posts, comments, page views and subscribers during the period May 24 to June 23 2018 by utilising the data analysis tools embedded in the reddit platform.
Results
We were able to set up a functioning health information exchange platform by May 24 2018 – within two weeks of the index case and one week of the official WHO verification of a Nipah virus outbreak. Over the following five weeks, the forum received a steady flow of traffic including posts (n=36) and comments (n=21) submitted, page views (n=840) and subscribers (n=33). On the busiest day, 368 page views were recorded. The forum provided information in local languages spoken in the outbreak region as well as in English, on how the virus spreads, symptoms of the disease, and how to take measures to avoid contracting it. Information on government helpline numbers and FAQs was also provided to the community at risk.
Conclusions
The delivery of a fully functional discussion forum within a short space of time during an actual health emergency demonstrates that our suggestion is fully practical. Our theory that reddit could provide a suitable platform to host such a forum was upheld. This offers great potential for public health communication during future serious disease outbreaks.
Original languageEnglish
JournalJournal of medical internet research: public health and surveillance
DOIs
Publication statusAccepted/In press - 7 Jul 2019
This open access research output is licenced under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License.

ID: 34292662