Joint Healthcare Professional and Patient Development of Communication Tools to Improve the Standard of MS Care. / Oreja-Guevara, Celia; Potra, S; Bauer, B; Centonze, D; Giambastiani, MP; Giovannoni, G ; Kesselring, J; Langdon, Dawn; Morrow, SA; Nouvet-Gire, J; Pontaga, M; Rieckmann, P; Shippling, S; Alexandri, N; Shanahan, J; Thompson, H; Van Galen, P; Vermersch, P; Yeandle, D.

In: Advances in Therapy, 05.09.2019, p. 1-15.

Research output: Contribution to journalArticle

E-pub ahead of print

Standard

Joint Healthcare Professional and Patient Development of Communication Tools to Improve the Standard of MS Care. / Oreja-Guevara, Celia; Potra, S; Bauer, B; Centonze, D; Giambastiani, MP; Giovannoni, G ; Kesselring, J; Langdon, Dawn; Morrow, SA; Nouvet-Gire, J; Pontaga, M; Rieckmann, P; Shippling, S; Alexandri, N; Shanahan, J; Thompson, H; Van Galen, P; Vermersch, P; Yeandle, D.

In: Advances in Therapy, 05.09.2019, p. 1-15.

Research output: Contribution to journalArticle

Harvard

Oreja-Guevara, C, Potra, S, Bauer, B, Centonze, D, Giambastiani, MP, Giovannoni, G, Kesselring, J, Langdon, D, Morrow, SA, Nouvet-Gire, J, Pontaga, M, Rieckmann, P, Shippling, S, Alexandri, N, Shanahan, J, Thompson, H, Van Galen, P, Vermersch, P & Yeandle, D 2019, 'Joint Healthcare Professional and Patient Development of Communication Tools to Improve the Standard of MS Care', Advances in Therapy, pp. 1-15. https://doi.org/10.1007/s12325-019-01071-9

APA

Oreja-Guevara, C., Potra, S., Bauer, B., Centonze, D., Giambastiani, MP., Giovannoni, G., Kesselring, J., Langdon, D., Morrow, SA., Nouvet-Gire, J., Pontaga, M., Rieckmann, P., Shippling, S., Alexandri, N., Shanahan, J., Thompson, H., Van Galen, P., Vermersch, P., & Yeandle, D. (2019). Joint Healthcare Professional and Patient Development of Communication Tools to Improve the Standard of MS Care. Advances in Therapy, 1-15. https://doi.org/10.1007/s12325-019-01071-9

Vancouver

Oreja-Guevara C, Potra S, Bauer B, Centonze D, Giambastiani MP, Giovannoni G et al. Joint Healthcare Professional and Patient Development of Communication Tools to Improve the Standard of MS Care. Advances in Therapy. 2019 Sep 5;1-15. https://doi.org/10.1007/s12325-019-01071-9

Author

Oreja-Guevara, Celia ; Potra, S ; Bauer, B ; Centonze, D ; Giambastiani, MP ; Giovannoni, G ; Kesselring, J ; Langdon, Dawn ; Morrow, SA ; Nouvet-Gire, J ; Pontaga, M ; Rieckmann, P ; Shippling, S ; Alexandri, N ; Shanahan, J ; Thompson, H ; Van Galen, P ; Vermersch, P ; Yeandle, D. / Joint Healthcare Professional and Patient Development of Communication Tools to Improve the Standard of MS Care. In: Advances in Therapy. 2019 ; pp. 1-15.

BibTeX

@article{a4331ddddf754c508b80dc5c3edb4eb3,
title = "Joint Healthcare Professional and Patient Development of Communication Tools to Improve the Standard of MS Care",
abstract = "INTRODUCTION: Effective communication between patients and healthcare professionals (HCPs) is important to enhance outcomes in multiple sclerosis (MS). However, in practice, patients often report a disconnect in communication. Communication tools to aid patient-HCP communication have a long history of use in many chronic conditions. For example, symptom diaries have been shown to enhance outcomes in cancer, headache and sleep disorder management. MS in the 21st Century, a Steering Group of HCP specialists and patients with MS (PwMS), has created two communication tools designed for use by both patients and their HCPs.METHODS: The Steering Group first identified prominent issues in patient-HCP communication through group discussions and survey data. Following this, a series of workshops led to the development of two communication tools as potential solutions to these identified issues in communication.RESULTS: The two most prominent issues identified were HCP time constraints during appointments and the misalignment of patient and HCP priorities-the communication tools developed through the workshops were created to address these. The {"}myMS priorities{"} tool [see supplementary materials] is designed to maximize the use of consultation time while the {"}myMS commitments{"} tool [see supplementary materials] aims to improve patient-HCP shared decision-making.CONCLUSIONS: The MS in the 21st Century Steering Group adopted a broad, iterative and collaborative approach in the development of these tools to help ensure they would be as useful as possible to both HCPs and PwMS. These tools have been developed through shared patient-HCP expertise and are based on existing tools in other therapy areas as well as a review of the existing literature and data from MS in the 21st Century Steering Group surveys. The next steps will focus on the validation of these tools through testing them in real-world environments and clinical trials.",
author = "Celia Oreja-Guevara and S Potra and B Bauer and D Centonze and MP Giambastiani and G Giovannoni and J Kesselring and Dawn Langdon and SA Morrow and J Nouvet-Gire and M Pontaga and P Rieckmann and S Shippling and N Alexandri and J Shanahan and H Thompson and {Van Galen}, P and P Vermersch and D Yeandle",
year = "2019",
month = sep,
day = "5",
doi = "10.1007/s12325-019-01071-9",
language = "English",
pages = "1--15",
journal = "Advances in Therapy",

}

RIS

TY - JOUR

T1 - Joint Healthcare Professional and Patient Development of Communication Tools to Improve the Standard of MS Care

AU - Oreja-Guevara, Celia

AU - Potra, S

AU - Bauer, B

AU - Centonze, D

AU - Giambastiani, MP

AU - Giovannoni, G

AU - Kesselring, J

AU - Langdon, Dawn

AU - Morrow, SA

AU - Nouvet-Gire, J

AU - Pontaga, M

AU - Rieckmann, P

AU - Shippling, S

AU - Alexandri, N

AU - Shanahan, J

AU - Thompson, H

AU - Van Galen, P

AU - Vermersch, P

AU - Yeandle, D

PY - 2019/9/5

Y1 - 2019/9/5

N2 - INTRODUCTION: Effective communication between patients and healthcare professionals (HCPs) is important to enhance outcomes in multiple sclerosis (MS). However, in practice, patients often report a disconnect in communication. Communication tools to aid patient-HCP communication have a long history of use in many chronic conditions. For example, symptom diaries have been shown to enhance outcomes in cancer, headache and sleep disorder management. MS in the 21st Century, a Steering Group of HCP specialists and patients with MS (PwMS), has created two communication tools designed for use by both patients and their HCPs.METHODS: The Steering Group first identified prominent issues in patient-HCP communication through group discussions and survey data. Following this, a series of workshops led to the development of two communication tools as potential solutions to these identified issues in communication.RESULTS: The two most prominent issues identified were HCP time constraints during appointments and the misalignment of patient and HCP priorities-the communication tools developed through the workshops were created to address these. The "myMS priorities" tool [see supplementary materials] is designed to maximize the use of consultation time while the "myMS commitments" tool [see supplementary materials] aims to improve patient-HCP shared decision-making.CONCLUSIONS: The MS in the 21st Century Steering Group adopted a broad, iterative and collaborative approach in the development of these tools to help ensure they would be as useful as possible to both HCPs and PwMS. These tools have been developed through shared patient-HCP expertise and are based on existing tools in other therapy areas as well as a review of the existing literature and data from MS in the 21st Century Steering Group surveys. The next steps will focus on the validation of these tools through testing them in real-world environments and clinical trials.

AB - INTRODUCTION: Effective communication between patients and healthcare professionals (HCPs) is important to enhance outcomes in multiple sclerosis (MS). However, in practice, patients often report a disconnect in communication. Communication tools to aid patient-HCP communication have a long history of use in many chronic conditions. For example, symptom diaries have been shown to enhance outcomes in cancer, headache and sleep disorder management. MS in the 21st Century, a Steering Group of HCP specialists and patients with MS (PwMS), has created two communication tools designed for use by both patients and their HCPs.METHODS: The Steering Group first identified prominent issues in patient-HCP communication through group discussions and survey data. Following this, a series of workshops led to the development of two communication tools as potential solutions to these identified issues in communication.RESULTS: The two most prominent issues identified were HCP time constraints during appointments and the misalignment of patient and HCP priorities-the communication tools developed through the workshops were created to address these. The "myMS priorities" tool [see supplementary materials] is designed to maximize the use of consultation time while the "myMS commitments" tool [see supplementary materials] aims to improve patient-HCP shared decision-making.CONCLUSIONS: The MS in the 21st Century Steering Group adopted a broad, iterative and collaborative approach in the development of these tools to help ensure they would be as useful as possible to both HCPs and PwMS. These tools have been developed through shared patient-HCP expertise and are based on existing tools in other therapy areas as well as a review of the existing literature and data from MS in the 21st Century Steering Group surveys. The next steps will focus on the validation of these tools through testing them in real-world environments and clinical trials.

U2 - 10.1007/s12325-019-01071-9

DO - 10.1007/s12325-019-01071-9

M3 - Article

SP - 1

EP - 15

JO - Advances in Therapy

JF - Advances in Therapy

ER -