“It put control back onto my family situation” : family experiences of positive behaviour support. / Botterill, Sinead; Cottam, Susan; Fowke, Alex; Theodore, Kate.

In: Advances in Mental Health and Intellectual Disabilities, 2019, p. 1-11.

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“It put control back onto my family situation” : family experiences of positive behaviour support. / Botterill, Sinead; Cottam, Susan; Fowke, Alex; Theodore, Kate.

In: Advances in Mental Health and Intellectual Disabilities, 2019, p. 1-11.

Research output: Contribution to journalArticle

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@article{be05c903dcad4f2d87eb1e5310c9b8be,
title = "“It put control back onto my family situation”: family experiences of positive behaviour support",
abstract = "Purpose: Positive Behaviour Support (PBS) is currently considered best practice for managing challenging behaviour in young people with intellectual and developmental disabilities. A key principle of PBS is that all members of the person’s support network participate in the assessment and intervention. It is therefore important to understand what factors act as facilitators or barriers to family engagement, however, research in this area is limited. The current study conducted a novel piece of qualitative research analysis into experiences of family members of young people who have received family-based PBS.Design/methodology/approach: Eight parents of a young person with an intellectual or developmental disability who had received PBS were interviewed about their experiences and factors they found helpful and hindering in terms of their engagement. Thematic Analysis allowed a detailed and robust interpretation of the qualitative data.Findings: Five superordinate themes were identified; 1. PBS is more than just strategies; 2. Considering the family context; 3. The therapist/family relationship; 4. Acknowledging challenges and the ongoing nature of the problem; and 5. Supporting family member change.Research limitations/implications: Although research was rigorously conducted, the small sample size mean findings should be considered preliminary.Originality/value: The literature related to family engagement in PBS is limited and largely based on the opinions of professionals. This study identified factors that parents themselves felt were helpful and hindering in terms of their engagement and offers practical suggestions for services and future research.",
author = "Sinead Botterill and Susan Cottam and Alex Fowke and Kate Theodore",
year = "2019",
doi = "10.1108/AMHID-11-2018-0049",
language = "English",
pages = "1--11",
journal = "Advances in Mental Health and Intellectual Disabilities",
issn = "2044-1282",
publisher = "Emerald Group Publishing Ltd.",

}

RIS

TY - JOUR

T1 - “It put control back onto my family situation”

T2 - family experiences of positive behaviour support

AU - Botterill, Sinead

AU - Cottam, Susan

AU - Fowke, Alex

AU - Theodore, Kate

PY - 2019

Y1 - 2019

N2 - Purpose: Positive Behaviour Support (PBS) is currently considered best practice for managing challenging behaviour in young people with intellectual and developmental disabilities. A key principle of PBS is that all members of the person’s support network participate in the assessment and intervention. It is therefore important to understand what factors act as facilitators or barriers to family engagement, however, research in this area is limited. The current study conducted a novel piece of qualitative research analysis into experiences of family members of young people who have received family-based PBS.Design/methodology/approach: Eight parents of a young person with an intellectual or developmental disability who had received PBS were interviewed about their experiences and factors they found helpful and hindering in terms of their engagement. Thematic Analysis allowed a detailed and robust interpretation of the qualitative data.Findings: Five superordinate themes were identified; 1. PBS is more than just strategies; 2. Considering the family context; 3. The therapist/family relationship; 4. Acknowledging challenges and the ongoing nature of the problem; and 5. Supporting family member change.Research limitations/implications: Although research was rigorously conducted, the small sample size mean findings should be considered preliminary.Originality/value: The literature related to family engagement in PBS is limited and largely based on the opinions of professionals. This study identified factors that parents themselves felt were helpful and hindering in terms of their engagement and offers practical suggestions for services and future research.

AB - Purpose: Positive Behaviour Support (PBS) is currently considered best practice for managing challenging behaviour in young people with intellectual and developmental disabilities. A key principle of PBS is that all members of the person’s support network participate in the assessment and intervention. It is therefore important to understand what factors act as facilitators or barriers to family engagement, however, research in this area is limited. The current study conducted a novel piece of qualitative research analysis into experiences of family members of young people who have received family-based PBS.Design/methodology/approach: Eight parents of a young person with an intellectual or developmental disability who had received PBS were interviewed about their experiences and factors they found helpful and hindering in terms of their engagement. Thematic Analysis allowed a detailed and robust interpretation of the qualitative data.Findings: Five superordinate themes were identified; 1. PBS is more than just strategies; 2. Considering the family context; 3. The therapist/family relationship; 4. Acknowledging challenges and the ongoing nature of the problem; and 5. Supporting family member change.Research limitations/implications: Although research was rigorously conducted, the small sample size mean findings should be considered preliminary.Originality/value: The literature related to family engagement in PBS is limited and largely based on the opinions of professionals. This study identified factors that parents themselves felt were helpful and hindering in terms of their engagement and offers practical suggestions for services and future research.

U2 - 10.1108/AMHID-11-2018-0049

DO - 10.1108/AMHID-11-2018-0049

M3 - Article

SP - 1

EP - 11

JO - Advances in Mental Health and Intellectual Disabilities

JF - Advances in Mental Health and Intellectual Disabilities

SN - 2044-1282

ER -