Childhood epilepsy in contemporary society : risk perceptions among children and their family members. / Webster, Michelle.

In: Health, Risk and Society, Vol. 22, No. 1, 2020, p. 53-68.

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Childhood epilepsy in contemporary society : risk perceptions among children and their family members. / Webster, Michelle.

In: Health, Risk and Society, Vol. 22, No. 1, 2020, p. 53-68.

Research output: Contribution to journalArticle

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@article{6144a3a3feb344bb9488fd7d77322697,
title = "Childhood epilepsy in contemporary society: risk perceptions among children and their family members",
abstract = "Although uncertainty is a key characteristic of epilepsy, and despite the close relationship between uncertainty and risk, our understanding of individuals{\textquoteright} experiences of childhood epilepsy in relation to risk is limited. In this paper I explore family members{\textquoteright} perceptions of the risks associated with the condition by drawing on qualitative data collected during 2013 and 2014 from 24 families with a child with epilepsy (including data from 28 parents, 13 children with epilepsy and 14 siblings). The diagnosis of childhood epilepsy provided parents and children with a new framework that they used to evaluate risks posed by the physical environment. Indeed, roads, water and heights were reconceptualised when viewed through an {\textquoteleft}epilepsy lens{\textquoteright} and were seen to present more risk to the child with epilepsy in comparison to the level of risk the same hazards posed to their siblings or peers. Furthermore, while parents described prioritising new and reconceptualised physical risks to their child, the children with epilepsy were more concerned about being stigmatised by their peers. The children{\textquoteright}s discussions surrounding stigma suggest that this results from interactions with their peers, rather than stigma being learnt within the family, as previous studies have suggested. Overall, I demonstrate that risk is a central feature of contemporary experiences of epilepsy for children with the condition and their parents, but that parents and children perceive and prioritise risks differently.",
author = "Michelle Webster",
year = "2020",
doi = "10.1080/13698575.2020.1714556",
language = "English",
volume = "22",
pages = "53--68",
journal = "Health, Risk and Society",
issn = "1369-8575",
publisher = "Routledge",
number = "1",

}

RIS

TY - JOUR

T1 - Childhood epilepsy in contemporary society

T2 - risk perceptions among children and their family members

AU - Webster, Michelle

PY - 2020

Y1 - 2020

N2 - Although uncertainty is a key characteristic of epilepsy, and despite the close relationship between uncertainty and risk, our understanding of individuals’ experiences of childhood epilepsy in relation to risk is limited. In this paper I explore family members’ perceptions of the risks associated with the condition by drawing on qualitative data collected during 2013 and 2014 from 24 families with a child with epilepsy (including data from 28 parents, 13 children with epilepsy and 14 siblings). The diagnosis of childhood epilepsy provided parents and children with a new framework that they used to evaluate risks posed by the physical environment. Indeed, roads, water and heights were reconceptualised when viewed through an ‘epilepsy lens’ and were seen to present more risk to the child with epilepsy in comparison to the level of risk the same hazards posed to their siblings or peers. Furthermore, while parents described prioritising new and reconceptualised physical risks to their child, the children with epilepsy were more concerned about being stigmatised by their peers. The children’s discussions surrounding stigma suggest that this results from interactions with their peers, rather than stigma being learnt within the family, as previous studies have suggested. Overall, I demonstrate that risk is a central feature of contemporary experiences of epilepsy for children with the condition and their parents, but that parents and children perceive and prioritise risks differently.

AB - Although uncertainty is a key characteristic of epilepsy, and despite the close relationship between uncertainty and risk, our understanding of individuals’ experiences of childhood epilepsy in relation to risk is limited. In this paper I explore family members’ perceptions of the risks associated with the condition by drawing on qualitative data collected during 2013 and 2014 from 24 families with a child with epilepsy (including data from 28 parents, 13 children with epilepsy and 14 siblings). The diagnosis of childhood epilepsy provided parents and children with a new framework that they used to evaluate risks posed by the physical environment. Indeed, roads, water and heights were reconceptualised when viewed through an ‘epilepsy lens’ and were seen to present more risk to the child with epilepsy in comparison to the level of risk the same hazards posed to their siblings or peers. Furthermore, while parents described prioritising new and reconceptualised physical risks to their child, the children with epilepsy were more concerned about being stigmatised by their peers. The children’s discussions surrounding stigma suggest that this results from interactions with their peers, rather than stigma being learnt within the family, as previous studies have suggested. Overall, I demonstrate that risk is a central feature of contemporary experiences of epilepsy for children with the condition and their parents, but that parents and children perceive and prioritise risks differently.

U2 - 10.1080/13698575.2020.1714556

DO - 10.1080/13698575.2020.1714556

M3 - Article

VL - 22

SP - 53

EP - 68

JO - Health, Risk and Society

JF - Health, Risk and Society

SN - 1369-8575

IS - 1

ER -