Autodriven Photo-Elicitation Interviews: Accessing Children’s Experiences of Epilepsy

My doctoral research focused on the experience and management of childhood epilepsy within the family from the perspective of children with epilepsy, their parents, and their siblings. Previous studies addressing how children experience living with epilepsy had primarily drawn on adults’ recollections of their childhoods with the condition. Although these studies were insightful, the way in which adults describe their childhoods often differs to how children feel at the time. Consequently, I wanted to hear from children themselves about what it was like to live with epilepsy.