A model of caregiver paediatric HIV disclosure decision-making

Michael Evangeli, Ashraf Kagee

Research output: Contribution to journalArticlepeer-review

155 Downloads (Pure)


Many of the over 3 million HIV-positive children will only be told of their status as adolescents. Knowing one’s status may increase treatment adherence, reduce onward HIV transmission, increase trust in caregivers and maximise available support. Yet deciding whether, what, how and when to tell HIV-positive children about their condition is challenging for caregivers. We systematically review HIV disclosure theories before presenting a process model of caregiver paediatric HIV disclosure decision-making. The model, consisting of both a pre-intention and a post-intention stage, integrates individual and contextual determinants. It aims to be situationally specific, broadly applicable and consistent with the empirical literature. Research and practice implications are discussed.
Original languageEnglish
Pages (from-to)338-353
Number of pages16
JournalPsychology, Health and Medicine
Issue number3
Early online date29 Jun 2015
Publication statusPublished - 2016

Cite this